The NDIS in Macquarie

18 September 2019

I am very much looking forward to hearing some answers from the minister today on some of the questions that the people who are struggling with the NDIS in the Blue Mountains and the Hawkesbury, in my electorate of Macquarie, have. These are their questions. To be honest, the thing I'd really like to know, especially having heard some of the remarks of the member for North Sydney, is: is the minister happy with how the NDIS is going? Are you happy with where it's at, with the experience that every single person is having? Are you satisfied? Is it good enough? Or, as the member for North Sydney indicates, is there a lot of room for improvement? If you're happy with the NDIS, if that's how you feel, you need to tell us now so that people can stop building up their hope that things are going to change, that things are going to get better. Right now they do have hope. They think you are working behind the scenes to fix things. Do I share that hope? Not particularly.


Let's talk about getting a plan. I listen to my constituents, and what they're telling me is that the current system is really terrifying for them. This current system is making mums and dads and carers fight for their kids not just once but again and again and again. The government's playbook appears to be: 'Make them spend hours on the phone fighting to get what their kids need or what they themselves need. Get them to a point of exhaustion. Have them give up. Then deliver a $1.6 billion underspend on the NDIS.' Was that the government's plan all along? Is the government's idea of good policy delivery to make the service completely inaccessible so that an underspend can then be funnelled into a budget surplus? How do you intend to fix this mess so that mums and dads all across the country, particularly in the Blue Mountains and Hawkesbury, aren't reduced to tears on a daily basis fighting for their child to have what they're entitled to?


It's like you've modelled it on The Hunger Games, and only those who have the energy to keep fighting are going to make it through your system. And I'll give you examples. This has been raised with me by Rachel, mother of nine-year-old Cameron. She is fighting and is exhausted from the fight. Chris Mousley tells me he calculated that he spent 100 hours trying to get basic service delivery for his two children under the NDIS. Are you happy, Minister, with the requirement that, once people have gone through all of this, they have to do it again every 12 months? What are the key changes you intend to make to improve the journey for parents and participants?


I want to talk about the advocacy of service providers and volunteers who recognise what this struggle is for many families—people like Able2, who, unfunded, go into bat for their clients because they are emotionally invested in their work; people like Julianne; and people like Linda Fenech, the mum of Lucy. Linda is currently supporting 28 people on a voluntary basis as they navigate the red-tape-heavy NDIS, and she does that because she wants to be able to share some of the wins she has had as a mum of a daughter she fights fiercely for. Does the minister have any plan to recognise the work that providers and individuals do as advocates?


Let's talk about quality of planners. Is the government happy with the quality of planning being done? And, if not, what do you intend to do to fix it? How do you plan to improve the skills and expertise of planners? Currently we have drastically different plans being written for very similarly impacted individuals, often meaning someone is really undersupported while someone else gets what they need. Why doesn't the government allow for drafted plans to be viewed by participants? Every participant tells me this would absolutely streamline the process.


When the plans are approved, there are huge delays in receiving assistive technology, whether it be a leg or a wheelchair. I have been contacted by people who have been waiting for 12 to 24 months, and, unfortunately, letters to your office have not had responses. So I ask the minister: why does it take so long? Why do they need to renew those OT assessments? Why is the system so laden with red tape? There are the same problems with car modifications. Liam, dad of three-year-old Asher, raised this. Why does it take so long? Why are the rules so inflexible, given the reality that people can't always buy a brand-new car? These are some of the many questions my community has. My other question is: will the minister come and meet with my community? I would happily invite them to sha

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